Understanding Epithelioid Sarcoma
A rare cancer that inspired our mission and continues to shape our work.
Epithelioid sarcoma is a rare and aggressive form of soft tissue cancer that deeply impacted our lives and led to the creation of The Stazi Foundation.
By sharing information and raising awareness, we hope to help others better understand this disease and support those navigating similar journeys.
Although it may start slowly, it can become aggressive and spread to other parts of the body.
Key Facts:
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Accounts for less than 1% of soft tissue sarcomas
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Most commonly affects young adults
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Often misdiagnosed in early stages
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Has a high risk of recurrence
Signs to be Aware of:
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A painless lump under the skin
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A slow-growing mass
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Swelling or tenderness
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A wound that does not heal
Diagnosis & Treatment
Diagnosis typically requires imaging and biopsy by specialists. Treatment may include surgery, radiation, chemotherapy, or targeted therapies depending on the case.
Learn More From Trusted Sources
For detailed and up-to-date medical information, we encourage you to visit:
Official information from the U.S. government's leading cancer research agency.
Information and resources for rare diseases and patients seeking support.